PeRC strives to achieve excellence in facilitating clinical research in the primary care setting. This is accomplished by serving as a liaison between the clinical investigators and the practices of CHOP’s primary care network.
Since 2002, PeRC has developed close professional and personal connections with individual physicians, nurses and administrative staff. PeRC's experienced staff understands the dynamics of a variety of clinical practice settings and the operational roles within them. We understand the challenges and strengths of individual facilities and their unique procedures, policies and patient demographics.
- Researchers: We help researchers with the many administrative needs associated with design and recruitment for research studies that utilize the network's practices.
- Care Centers and Practices: We help our network's practices, their physicians, nurses, and support staff, contribute to research by providing the framework in which to operate and the education necessary to readily participate in ongoing studies.
- Patients and Families: We inform our patients and their families of ongoing research and how their experiences in the clinic can translate into true medical value, while maintaining confidentiality.
Children's Hospital Researcher Services
- Study implementation: We incorporate research goals objectives into a collaborative plan that meets established time goals and is amenable to each network site.
- Site recruitment: Our members staff approach the key contacts at network sites to communicate study requirements, increase value for the project, generally promote participation, and provide continuing medical education-accredited seminars related to the study topic.
- Patient recruitment: We ensure that patients are recruited in a non-coercive manner that is consistent with the high quality procedures each of the practice-based research network facilities have in place.
- Project monitoring and evaluation: Our staff conducts ongoing general monitoring of project progress relative to the research goals and periodically evaluates sites to identify any areas that can be improved during the course of the project.
- Process/systems change: We customize electronic processes and systems employed within the Hospital's primary care facilities according to the research protocol and recruitment strategy in order to optimize results. Examples are given below:
- In many cases, the electronic health record (EHR) can identify patients who are suitable for a research project at the point of care, increasing participation numbers in a directed manner.
- Children's Hospital's EHR can be customized to reflect changes in the standard of care. Research outcomes can be translated into direct clinical application either on a network-wide level or for a single community.
Care Center and Practice Services
- Link to clinical research: We serve as the primary conduit for practicing physicians to gain access to clinical research initiatives.
- Infrastructure for participation: We offer a variety of communication channels and support each of the network centers.. We facilitate initial communication of research aims and outcomes and provide tools to perform the administrative tasks necessary for successful completion.
- Training: We consult with members of the practice who will be participating in the research project to ensure that they are aware of the procedures and policies that govern the research. We also provide suggestions for how to communicate the research goals and issues with patients and their families. Electronic and in-person training may be available.
- Education: We can provide continuing medical education programs to individuals within the network who are interested in learning more about our studies. (Link to CME page).
Patients and Families
Education: Patients and their families learn about our research projects through their interactions with the practices. The information presented by the practices includes:
- The rationale for conducting the research
- Requirements for taking part in the research project
- Immediate benefits such as free services, expedited appointments and/or compensation for their time and travel.
- An explanation of how the research may ultimately benefit patients
- Confidentiality of participation and the rules for using the data derived from the research